up until now...

Some of you know, some do not....

This tuesday we see the Dr. that will basically be drews nutritionist for the GFCF (gluten free casein free) diet. After this appt. I understand we should be able to start the diet.

www.GFCFdiet.com

We have known for a while now that drew has apraxia, but in the past few weeks his speech therapist said there may be something going on besides apraxia, maybe something mental. One of my best friends in the whole world, Heidi, was searching the internet to try and figure out what this could be. She found a syndrome called "Williams Syndrome". After looking at the info I was like WOW, this could quite possibly be what drew has!!!! So we have an appt with the genetics clinic April 13th to have him tested. The test is called a FISH test.

www.apraxia-kids.org
www.williams-syndrome.org

We are going to start using the PECS (picture exchange communication system) very soon. His speech is not developing at the rate it should...to put it simply, and he needs a way to communicate asap.

www.PECS.com

He started baseball this past week. He was so precious!!! I have pics and video, but dont know how to put them on here yet. As soon as I get a schedule I will post it.

April 1st we see the pediactric neurologist. I have no idea what we are looking for or what they will be able to tell us but its something we wanted to do in case something came of it.

He is still going to school (PPCD program) mon-fri 3 hrs a day. We are taking speech therapy at TXCH (texas childrens) from 3 days to 2 days. The 3rd day will soon be OT (occupational therapy). We have been on a waiting list for this therapy.

There is still a generous amount of info we would like to share with you all, but it will take some time to get it together....and condensed, lol.

WE LOVE YOU!!!