Yesterday the PECS (picture exchange communication system) came in the mail!!! We are so excited!! Andy and I were cutting out the pictures and putting velcro on everything last night. Drew was going through all his new stuff with a huge smile on his face, so cute. His speech therapist has been using this system with him in his sessions and is amazed at how quickly he has picked it up and how receptive he is to it, so we feel this is going to be a really good thing for him.
Thank you to everyone who has joined our blog. It makes us feel so supported and loved!!!
Saturday, March 20, 2010
DAN Dr. appt
We went tuesday to see the dr and talked with him for about 2 hrs. He gave us a hair test and a stool test to take home. The hair test is to see the toxins and metals that are in his system and the stool test will tell us the levels of nutrients in his body and vitamin deficiencies he may have. Once those have been taken and mailed in we can start the supplements he gave us at the appt. and then start the diet.
Supplements starting next week include:
Cod Liver Oil
Cal-Mag Zinc Liquid
Iron drops
THER-BIOTIC complete Multi-species Probiotic Supplement
VITASPECTRUM mult vitamin/mineral/trace element supp. iron and copper free
Supplements starting next week include:
Cod Liver Oil
Cal-Mag Zinc Liquid
Iron drops
THER-BIOTIC complete Multi-species Probiotic Supplement
VITASPECTRUM mult vitamin/mineral/trace element supp. iron and copper free
Saturday, March 13, 2010
up until now...
Some of you know, some do not....
This tuesday we see the Dr. that will basically be drews nutritionist for the GFCF (gluten free casein free) diet. After this appt. I understand we should be able to start the diet.
www.GFCFdiet.com
We have known for a while now that drew has apraxia, but in the past few weeks his speech therapist said there may be something going on besides apraxia, maybe something mental. One of my best friends in the whole world, Heidi, was searching the internet to try and figure out what this could be. She found a syndrome called "Williams Syndrome". After looking at the info I was like WOW, this could quite possibly be what drew has!!!! So we have an appt with the genetics clinic April 13th to have him tested. The test is called a FISH test.
www.apraxia-kids.org
www.williams-syndrome.org
We are going to start using the PECS (picture exchange communication system) very soon. His speech is not developing at the rate it should...to put it simply, and he needs a way to communicate asap.
www.PECS.com
He started baseball this past week. He was so precious!!! I have pics and video, but dont know how to put them on here yet. As soon as I get a schedule I will post it.
April 1st we see the pediactric neurologist. I have no idea what we are looking for or what they will be able to tell us but its something we wanted to do in case something came of it.
He is still going to school (PPCD program) mon-fri 3 hrs a day. We are taking speech therapy at TXCH (texas childrens) from 3 days to 2 days. The 3rd day will soon be OT (occupational therapy). We have been on a waiting list for this therapy.
There is still a generous amount of info we would like to share with you all, but it will take some time to get it together....and condensed, lol.
WE LOVE YOU!!!
This tuesday we see the Dr. that will basically be drews nutritionist for the GFCF (gluten free casein free) diet. After this appt. I understand we should be able to start the diet.
www.GFCFdiet.com
We have known for a while now that drew has apraxia, but in the past few weeks his speech therapist said there may be something going on besides apraxia, maybe something mental. One of my best friends in the whole world, Heidi, was searching the internet to try and figure out what this could be. She found a syndrome called "Williams Syndrome". After looking at the info I was like WOW, this could quite possibly be what drew has!!!! So we have an appt with the genetics clinic April 13th to have him tested. The test is called a FISH test.
www.apraxia-kids.org
www.williams-syndrome.org
We are going to start using the PECS (picture exchange communication system) very soon. His speech is not developing at the rate it should...to put it simply, and he needs a way to communicate asap.
www.PECS.com
He started baseball this past week. He was so precious!!! I have pics and video, but dont know how to put them on here yet. As soon as I get a schedule I will post it.
April 1st we see the pediactric neurologist. I have no idea what we are looking for or what they will be able to tell us but its something we wanted to do in case something came of it.
He is still going to school (PPCD program) mon-fri 3 hrs a day. We are taking speech therapy at TXCH (texas childrens) from 3 days to 2 days. The 3rd day will soon be OT (occupational therapy). We have been on a waiting list for this therapy.
There is still a generous amount of info we would like to share with you all, but it will take some time to get it together....and condensed, lol.
WE LOVE YOU!!!
Friday, March 12, 2010
Our first blog!
Welcome friends and family! We are starting this site to keep you informed more efficiently. As we get updates, go to appointments, or there are new developments in Drews condition, we will be posting the latest information here.
We are super new to blogging and are still trying to build the site, so it may be a few days (fingers crossed) before all of this is making sense and running smoothly. Please feel free to comment or ask any questions you have for us.
We are super new to blogging and are still trying to build the site, so it may be a few days (fingers crossed) before all of this is making sense and running smoothly. Please feel free to comment or ask any questions you have for us.
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